I have not spoken to the doctors about it because they will only say that the thyroid numbers are within the normal range. I can do some of my own research but the few things I have read tend to lead nowhere.Hi, I don't know anything about the MMA, but I added to (edited) my post above. Had you already looked into the BMS being possibly a result of the low thyroid issues? OMG, I feel for you if you are starting on a thyroid rollercoaster journey.
From this site, it seems like it isn't super-easy to get your medical records in the U.K. But it does offer some tips.I had a crp test done not long ago and am struggling to find out the exact result.
Thank you for that advice. I do agree.I hope the issue is worked out and you get over that. I share generally that whole food from vegetation like vegetable plants and fruit plants, and whole grains, without processed food stuff, is healthiest avoiding so many issues to health and well-being. I think it can't be bad for any issues, though I never saw this issue being mentioned. It is something to really try out.
Thank youSorry, I know BMS is not the same as dry mouth, but I have heard before that dry mouth can be the result of low thyroid, and it seems like something like that might exacerbate the BMS problem, just intuitively. And I don't know if any of the things that are supposed to help you deal with dry mouth might also offer any amount of relief, however small, in the more severe condition of BMS?
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Dry Mouth Remedies: 14 to Try
www.hopkinsmedicine.org
Well, best advice I can give is limit your diet to the same whole plant foods for weeks, (from Dr Gregers Daily Dozen list to get proper nutrition) and keeping a journal.\Well it seems I can not get the MMA test. The GP says I would have to be referred to Haemotology and that they would not be likely to test as my other tests are ok. She says that there would be other signs if the B12 were very low such as high MCV and MCH which they were not when last checked. She is sending me for the basic blood tests again.
I begged for help, I don't mind saying, but it was not successful. She said she could send me a second opinion from another oral consultant but I don't think there is any point in that. Consultants do not investigate issues like this (chronic). She asked if i would want to try amitryptiline but I don't want to take something that not only makes me feel half asleep but also, is just masking a problem.
She said everything had been done that could be but nothing has been done except to send me to the oral consultant which came to nothing and give me the general b12 test. I suggested some investigation into the issue such as allergies, mma test, thyroid med change? etc but she dismissed it all.
Anyway, I just wanted to update anyone who commented here with advice or opinions. I am going to begin doing some of the other things I spoke of previously and see if I can find the answer myself.
Thank you. Both good options to consider.♥Sorry to hear about your issues which sound very unpleasant. I agree with the advice to find a specialist in oral medicine, the pathway to whom may be better sought through a dentist rather than a GP. They are few and far between. I have little to add, except 1) a while ago I had an allergic reaction to a lip salve (I think it was lanolin, in something I had bought thinking it was vegan) and this was accompanied by a burning tongue and gums as well as all the skin peeling off my lips (lovely!). Eventually it was treated with steroid cream which worked very quickly and the burning sensation went away too. So an allergic reaction is possible. And 2) I suffered from "burning feet syndrome" for a long while, and still do occasionally and never really got to the bottom of it. Although my B12 levels were OK I doubled my dose just in case - the symptoms did improve although this may have been entirely coincidental. It may also have been a perimenopausal thing. One thing I did notice, was that when there was another source of pain (in my case, the horrible lip allergy for example) the pain in my feet seemed to disappear as if my brain was able to reprogramme itself to ignore one pain and concentrate on another and it made me think that behavioural techniques might help. Might be worth looking into, eg find a psychotherapist or hypnotist who specialises in chronic pain to see if you can at least manage the symptoms while you look for the cause. Sending my best wishes - I appreciate how distressing it can be x
Hi, do you mind if I ask if you are currently taking any other supplements besides the alpha lipoic acid, the Together Health Multi, and the Testa?I started taking Testa Omega 3 DHA and EPA and Together Health Vegan Multi but this all was after the problem started really.
Hi, those are the only supplements I take. I did a fair bit of research into the supplements before deciding on them and asked lots of questions. I made a nuisance of myself to them I am sure.Hi, do you mind if I ask if you are currently taking any other supplements besides the alpha lipoic acid, the Together Health Multi, and the Testa?
(I was asking because I looked up the multi and it doesn't seem to have as much B12 --or other B's for that matter--as you might find in some other multi's. It has 5mcg B12 in a pill, and it is in the methylcobalamin form which may be less stable, so you may not be getting the full 5mcg. So if B12 is something you are considering, maybe you'd want to add another supplement with more?)
According to this link, 5mcg is really the very bare minimum if you are taking it once a day. If your health isn't optimal, I can't help but wonder if getting more than the bare minimum would be better.
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can you link what you're taking? I've never heard of vegan whole food b12Hi, those are the only supplements I take. I did a fair bit of research into the supplements before deciding on them and asked lots of questions. I made a nuisance of myself to them I am sure.I noticed the b12 was lower than most too and when asked about it this was the reply:
"We use whole food B12 in the vegan mult. Whole food nutrients are created by taking synthetic nutrients, growing them into foods, and making them part of the food matrix on a molecular level. They go from being isolated molecules to being part of the food, just like the naturally occurring nutrients. This means we can provide a high supplemental dose that is easily recognised by the body and highly absorbed.
The absorption rates vary per nutrient, but wholefood B12 is about 250% more absorbed than isolated B12. So although we have to use the same NRV figures as isolated nutrients, to reach a more comparable amount to isolated B12, the figure should be multiplied.
Also, B12 absorption decreases drastically as the dose increases. About 56% of a 1-microgram isoalted dose is absrobed, but then it drops significantly after 2 mcg, in fact absorption is only 2% at doses of 500 mcg and 1.3% at doses of 1,000 mcg, so most of the benfit froms from the initial micrograms consumed. Products containing hundreds of micrograms do little to no better than products containing far less.
So long story short, yes the dose is plenty, and you'll likely absorb more of the 20 mcg in our product than a 500 mcg isolate product."
Here is the link. I am guessing he means they don't start out as "whole food" but through a process, become a whole food? Vegan Multican you link what you're taking? I've never heard of vegan whole food b12
They do sound great, but might try eliminating them for (a couple weeks?), maybe take a methyl b12 in meantimeHere is the link. I am guessing he means they don't start out as "whole food" but through a process, become a whole food? Vegan Multi
The thing is, I had the problem before I began taking these. I switched to them because of the problem- but I will include them in the elimination "diet" I am going to try soon just to see if there is any improvement.They do sound great, but might try eliminating them for (a couple weeks?), maybe take a methyl b12 in meantime
Lichens and the seaweeds could be problematic
oh oh. I'm back with some nitpicking. I think everything you said is mostly right.So long story short, yes the dose is plenty, and you'll likely absorb more of the 20 mcg in our product than a 500 mcg isolate product."
The thing is, I had the problem before I began taking these. I switched to them because of the problem- but I will include them in the elimination "diet" I am going to try soon just to see if there is any improvement.